Ryan continues with his good progress with few upsets. Sarah  took Rebecca to see him and Rachel today. She says how pleasantly surprised at how well he looked she was. I hope to be seeing him at the hospice next week, when he is there for respite care.

I forgot to mention yesterday that Ryan has resumed his Enzyme Replacement Therapy. This is good but sad news for me. He started his treatment in April 2007. Until he moved up North, I assisted the nurses nearly every week in the six years which have since passed. 

THURSDAY.
Another couple of days with Ryan continuing to make slow but steady progress. He has had a seizure but they are to be expected from time to time, being one of the symptoms of his particular strain of Hunters.
After six years of continuous use, Ryan's buggy, given to him by David and Victoria Beckham, is to be retired. A new four wheeled version is on the way, courtesy of the NHS.

Ryan in his, then, brand new buggy. January 2007.

Another OK night and day for Ryan with some smiles. I am hoping to get a new photo of him next weekend when Sarah and Rebecca visit - weather permitting. No snow in Stobswood but loads in Harrogate. This was our garden today after half of it had melted!

An average night and day for Ryan as he continues his, sometimes slow, progress. We can't expect every day to be brilliant and the fact that he is making progress is enough.

THURSDAY.
Spoke to Rachel in the car taking Ryan out for a change of scenery  She said he had not had a brilliant night but was fine when we spoke. Still getting some smiles. The really good news is that he has put on some more weight, some five pounds since his last weigh-in and considerably more than his lowest some weeks ago. I repeat myself yet again - Ryan, you are an amazing and much loved young man.

TUESDAY
Message from Rachel to tell me that Ryan is OK, a bit twitchy but still smiling. He was snuggled up on a sofa watching a film with carer Paul.

A really upbeat report from Rachel today. Ryan not only looks better after a long awaited haircut but he is also feeling a lot better, with plenty of smiles. He has even taken to watching football on TV although, unfortunately, he won't get to see much of Arsenal!
I am hoping to get a Skype link set up so that I can not only talk to Rachel but also see both her and Ryan.

Only some four weeks ago there was enough concern about Ryan's prospects for Bob and me to travel up to see him, possibly for the last time. Now he is once again confounding everyone, including his doctors, with his progress. Apart from a small seizure today, he is comfortable and has settled well into his new home. He has also started putting on some much needed weight. Ryan you are one fantastic young man - keep it up.

Wednesday.
A good night followed by a good day with some smiles. Rachel describes him as "chilling out" - a positive sign. Ryan is having a hair cut on Saturday. This in itself is another positive sign, as he hasn't been fit enough to have one for many weeks.

Ryan appears to be holding his own at home . No spectacular improvement but no deterioration either. Rachel says she is getting a reasonable amount of smiles.

Rachel tells me that everything is going to plan so far, with no unexpected problems.

The first night back home has gone well and he has also had a good day. Well done so far Ryan.

The video below is one of Rachel's and my favourites. It shows him in happier times but he still retains the ability to bless us with his wonderful smile. We hope you like it.

HOME AT LAST!
Against some predictions Ryan has made it back home. He has had a chilled out day and can now get used to his new home. Well done Ryan and well done Mum.

Back from my visit to the hospice. Ryan looked washed out when we arrived. I was not surprised to be told that he had a seizure during the night, which explained how he looked. However, he improved in typical Ryan fashion as the day progressed and by the time we left, he looked quite relaxed. 
Home tomorrow and hopefully, he will continue his slow improvement.

Ryan had a good night again and has followed it with another good day. He has been baking chocolate "things" in the kitchen, has had a bath and hair wash and should look really clean when I visit tomorrow!

After a pretty good night, Ryan is now in St Oswalds. Some music therapy, a bath and hopefully, a good nights sleep. Fingers crossed for nothing to stop him going home on Thursday.

Apart from the occasional sedation, Ryan has had a couple of good days. Yesterday he was taken (in his bed) to the hospital cinema. An unique experience only spoilt by his missing the end of the show due to toiletry requirements!
He is of to the hospice tomorrow and all being well, back home on Thursday.

Just spoken to Rachel who tells me that Ryan was a lot better after we left!
He also had a reasonable night and an OK day today. Keep it up Ryan.