27 January 2012

We were not able to give Ryan his ERT today as the cannula, only inserted yesterday, was bent! We hope he can have it next Monday.
Ryan continues to be relatively pain free but gets a bit agitated from time to time. He gave us some brief but broad smiles which made us all happy.
He is up to 830ml of feed and we hope this puts back some of the weight he has lost, as he is very thin.