Rachel was with Ryan last night and tells me that he continued to be uncomfortable until he eventually went to sleep quite late. He then slept until 6 am but is starting to get agitated again. I am going in late today and will update again tonight.
LATER. I went in at about 3 pm when Ryan started to get rather agitated and after sedation he managed an hour and a halfs sleep. He was then extremely agitated until a trachy change at about 8 pm quietened him down. He was quite calm when I left at around 10 o'clock.
As you know, all of the carers at Martin House are superb but I must mention particularly how much of a joy it was to be with Joy today. She not only looked after us both but went out of her way to ensure I understood all that was happening in the way of medication etc. Thank you Joy.
Thank you too to the management who let Ryan stay the extra two and a half weeks, whilst a care plan was put in place in Northumberland. The original plan was for just 40 hours per week but he will now receive the 24/7 attention which is now essential.