Rachel tells me that Ryan is not great today and having tummy ache again. She feels that something might be brewing and she is normally right when she gets this feeling.

I thought you would like to see this from Ethan's Mum on her CaringBridge page. Ethan has Hunters like Ryan and we went to see him in Ireland a few years ago. It is typical of the parents of Hunters children to find time to care and support others with the disease.

I would like to ask you to keep a very special boy, Ryan, in your thoughts, he is fighting Hunters and is having a hard time. We feel really close to Ryan and his family as we meet them a few years ago, they came from England for a visit and we fell in love with Ryan. 

Thank you all for checking up on Ethan, we appreciate the support and the messages are so uplifting... Thank you all.