Thursday, 11 April 2013

Ryan is still doing well albeit a bit twitchy today.
Sad news today that Professor Ed Wraith, world authority on mucopolysaccharide storage diseases, has died. Ed looked after Ryan for many years and was voted Well Child, Best Doctor in 2009. 
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3 comments:

  1. Unknown11 April 2013 at 14:41

    I visit Ryan's site most days. I am the Grandma of Oliver & Samuel Stevens. Ryan is an amazing little boy with an amazing family. Keep up the good work!
    So sad to hear about Ed Wraith. He was such a lovely man.
    Best wishes,
    Barbara Pollard

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  2. Ryan12 April 2013 at 05:29

    Thanks Barbara. The Stevens family is an inspirational one and Claire is a fantastic friend to Rachel.

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    Replies
    1. Unknown12 April 2013 at 07:33

      I think they keep each other sane! If nothing else this horrible disease has brought two lovely Mum's together.

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